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June 7, 2025
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Some people with ‘bendy body’ disease suffer a mind-boggling array of symptoms. Why isn’t the medical profession paying more attention?

Some people with ‘bendy body’ disease suffer a mind-boggling array of symptoms. Why isn’t the medical profession paying more attention?
One day in July 2021, my then 15-year-old daughter Poppy stumbled and fell while walking down some stairs, grazing her knee. It wasn’t a serious wound, but over the weeks it didn’t heal.

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